Wednesday was Charlotte’s surgery and she did fantastic! She went under well and came out of it well. Sadly the tube in the left ear did not clear up the issue she was having so we are going on June 7th to have her fitted for a hearing aid. Now, having it done this early is a good thing because she can get used to it, so when she starts to learn language it will be second nature to her and she will be used to it.
We had her blood tested while we where there because it has been a while since the last test. Her red blood cell count was 7.7, so we were admitted to the hospital and transfused. We now have to go back to the hematologist on the 6th to be tested again and see where we are. They are sending us to the Lexington Hearing and Speech Center for the hearing aid and I have read nothing but good things about them.
I am disappointed that the tubes did not work totally and that we have to add another place to our list. She is too precious to not follow up and do all this for, so June is shaping up to be very busy all ready! She seems to still be kind of tired from all the hubbub on Wednesday but for the most part she is doing well and is back to normal. Mom, not so much.
She has a doctor appointment on June 2nd and she has lost 7 ounces since the last one. Not sure why. I am hoping that once we start giving solids she will take off weight wise. She is six months old right now and so adorable. All the nurses in the OR loved her. When I came back to her after surgery she was being held by one nurse and 6 were standing around her.
All is good here. M is doing well back at work and is back at Drill as well. I have to run and figure what is for dinner.
Yesterday I had my neurologist appointment. Finally. I waited months for that appointment and I sure was not going to miss it! My neurologist was sort of surprised to find out that I have had a migraine for five months. Every single day since Charlotte was born. Ugh. Before that it was at most 3-4 times a month. We discussed what my headaches feel like and look like. All the symptoms that I have with them. We talked about the medications I have tried, which is not many recently. My issues with migraine medications is that most of them make you zombie like or knock me out. I can not have that with the kids being home with me. I made that totally clear yesterday and we settled on a plan for the short term.
For the next month I am on Topamax 25mg for the first week, it is one pill at night. After the first week, it is 1 pill in the morning and at night. The office is to call me in a month to find out if it is working for me or not. If it is not we have talked about admitting me to the hospital for 2-3 days and giving me IV drugs to break the cycle. I am hoping to avoid that because honestly, yea. I am to the point that honestly I will do what ever it takes to get rid of this migraine or series of migraines. I honestly have no idea what it means to be headache free. I have no idea what it is like to wake up in the morning and feel good anymore.
I am so tired of being reactionary when it comes to these headaches of mine. Let me be clear, I have been diagnosed with migraines. Unless you have specific symptoms that come along with the headache, you have a headache and there are different kinds, but you do not have a migraine. One of my pet peeves is that someone who has not been diagnosed will say, oh I have a migraine. No. You have a headache. If you can take over the counter things, most likely you have headaches. Although Excedrin Migraine is pretty good, but it only works for me if I catch it really early.
I feel bad for my kids because they do not understand that mommy has migraines and is in constant pain. I want to feel good again so that I can do fun things with them. I have basically forced myself to keep moving because no one else is here to do it. I wish I could pull the covers up over my head and sleep it off. On the good side, I have lost 5 pounds. I am so hoping that Topamax is the right medication for me.