So Much Going On…

13322147_10154176154503350_2458884458488236793_nThere is so much going on I am going to try to get it all in this one entry. So take a break, grab a drink and relax, this could get a bit long… LOL.

First of all, June is Migraine Awareness Month. I am happy/sad to be talking about this. If you see someone wearing a migraine awareness shirt please ask them about it. We want to tell our stories and be heard. More than that we want people to understand what migraine is and not. I will try to get a fact post in this month for all you out there who don’t know what they actually are and what happens.

Secondly, Charlotte did well with the surgery last Wednesday. We ended up being admitted for a blood transfusion that day too. Luckily we did not have to spend the night. So now she goes back to the hematologist on the 6th of this month for a check and possible transfusion. When they tested her last Wednesday she was at 7.7 for red blood cell count. Which is not super low but below 8 so her doctor wanted to transfuse. Considering that her last check was March 17th and we made it that long with out a transfusion is progress but we are now back on every 2 week check schedule.

Today is her 6 month well check and shots. She lost about 7 ounces again so that will have to be addressed, but I think once we start her on solids she will start to gain weight like a champ! We are supposed to get the O.K to start that today too. So today is exciting!

On the 7th of this month we have to head to Lexington Speech and Hearing Center to have a consult on a hearing aid for Charlotte. While she did well with the surgery, it did not clear up the issue on the left side. So, this is the next step for her before she starts learning to talk.

Our June calendar is filling up more than it was already! I am supposed to have a chat with the neurologist tomorrow and I am not sure he will like what I have to say and honestly I am not sure I will like what he has to say to me! I will try to update tomorrow after that conversation 13344618_10206964912266245_9072397591098437694_nhappens and let you know what happened and what will happen going forth.

Jeff is doing so well! He is growing by leaps and bounds! Speaking of which he can now climb on and off the bed by himself! He also has started to jump, so now he thinks that is so cool he does it every where! It is cute to watch. He is getting so big and learning so much. I am just beside myself because I am wondering where my little boy went!

Jeff and Charlotte love to babble at each other, it is so cute to watch. I will try to get some video of it happening. It sounds like they are having a whole conversation sometimes!

M is doing well. He has gone back to work and is back at Drill. In fact we have had (2) 3-day drills that went so much better than I could have hoped for. I am glad for that considering AT is coming at the end of summer and it is for 2 weeks! We will be fine though and by then hopefully everything will have settled down medically with Charlotte and all.

Well, I think that is all the news for now.. At least that I can remember at the moment anyway!

-Ciao!

Another Update

I know I am terrible lately at keeping everyone updated and I apologize for that. Life has been crazy and busy! So last Monday M and I talked about applying for Food stamps again. If you are a long time reader of this blog you know the issues we have had in the past with this. He agreed and I went and applied online. Within 10 minutes the guy called for the interview. By the end of that phone call we  had food stamps for Feb ( what is left of it anyway) and March. Which is helpful. I have to do a second interview and get the paperwork done then we will get food stamps for the rest of the year possibly. Keep your fingers crossed for us!

Charlotte has back to back doctor appointments tomorrow with the NICU grad clinic and the hematologist.  I am thinking she will need another transfusion tomorrow or sometime this week. WIC appointment is on Tuesday for us as well, so this will be a busy week!

M went back to Drill in Feb for the first time since surgery. He did well. So did we because it was our (the kids and I) first time all of us home all day with out him. His next Drill is beginning of March. He is doing so well with physical therapy.

Well, I am going to run, I am tired and I need a nap.

-Ciao!

A Crazy Week!

I know I have not been here much lately, I will tell you why. Charlotte was in the hospital. She was admitted on Monday and we got home Thursday night. She has the blood disorder I have and her red cell count dropped to 6. It is supposed to be 10 or more. She lost a lot of weight and the doctor was really worried about it. She was sent to the hospital immediately.

While in the hospital she received two blood transfusions and that helped a great deal. She is still on high calorie formula so she can rapidly gain weight because she is underweight right now. I was so worried I could not think straight. I had my lap top but I had to process what exactly was happening with us. She now has hematology appointments and on the 3rd she has her hearing appointment as well. Monday she goes to the pediatrician. So, this is about to get so busy. We are hoping to keep her red cell count  up, by herself. However, if she can not then she will need more blood transfusions. The hematologist will not even think about removing her spleen until she is at least three years old.

She still has her heart murmur and that appointment is in March. We will be at the hematologist every week for a while so they can monitor her. When we left the hospital her red cell count was 10.5, which is where it should be. We will test her on Wednesday to see how far if any it has fallen so we can see the rate that the red cells are being destroyed.

I am exhausted and still worried, but she has some really great medical professionals in her corner. I will try and get here to update on Wednesday after all the appointments have been done.

I need to run, it is time for her to eat!

-Ciao!

Oh Man Am I Tired!

Charlotte Swing First TimeI am so exhausted that honestly most days I have no idea what day it is or even who I am. At least until Jeff yells at me, but even then he does not say momma. LOL. Charlotte is doing well, gaining weight so now we do not have to go back to the doctor with her until January when she is 2 month old. We switched her formula to soy because she was very fussy and gassy. It seems to have helped some, but she is still very gassy and fussy sometimes, but it has not even been a whole week on the new formula, so I am hoping that things get better.

M is doing so well with physical therapy, they said he might be running by March again. I am so thrilled because that has been his serious goal. Once he starts running again he can get into shape again and pass a PT test for the Army he can pick up his 5 and then we can assess what will be next for us. He truly wants to go back to active duty and I am totally behind him on that. Once he has his 5 he only has to be in that rank until he can possibly pick up his 6.

So hopefully some good things coming in 2016, we could sure use them!! Jeff is really loving towards his sister and loves to kiss her. In fact, it is hard to get him to keep his hands off her when she is trying to sleep! He is helpful to me by putting the lid on the bottle and taking it off too when I need it.

Today Charlotte is in her swing for the first time. Not sure she totally likes it, but it gives my arms and back a break from holding her. I celebrated by taking a picture of course. I will post it here when I am done.

Well, my mind just went blank, so I will go… cause I can not remember what I wanted to say. Seems like normal for me right now.

-Ciao!

It’s Been Crazy Here

I am sorry for not keeping everyone updated, it has been kinda crazy the last few days. I went on Monday and sat with Charlotte for over an hour and fed her. It as nice to hold her again. She was off lights at that point, so that was good. Then her numbers spiked again and they moved her to the nursery. Well, techincally they moved her first then the numbers spiked. She was back up to 15 this morning but she is back down to 13 again tonight when I called. I am going to see her tomorrow and speak to the doctors because I have a lot of questions. 

We are of course worried about her and I was hoping to have her home this week but that looks like it is not going to happen. She is eating well and having lots of diapers, so that is good, I am worried about all the spikes and the effect it is having on her body. I also am wondering why this is happening most of all. I also am wondering what this is doing to her liver too. Like I said lots of questions. 

I have the best in-laws on the planet, they helped us out with rent.. so that is one less major thing on my mind and we will get some money today or tomorrow to pay the other bills that are due. We have food, so that is not an issue at this point. The WIC appointment to get Charlotte is on that is on the 8th so I am trying to get stuff in case she comes home before that so we can feed her. I am lucky and I have great friends, a friend of mine got me some diapers and an outfit and also shipped a box to me on Monday with other stuff for her. My MIL got her a bunch of clothes as well and other stuff. Right now, the immediate need is bottles and formula. 

Jeff is doing well, he is starting to actually call family members on the phone. LOL. I guess I am glad it is family and not some random person somewhere, although I am afraid that is next with the way he loves to push buttons. He is running all over the place and learned how to open a zip lock bag in the last few days. Now nothing is safe! 

M is doing well, he started physical therapy and the physical therapist was impressed with what he has done on his own. He is working hard as usual and is happy with his own progress. I am just glad he finally is in physical therapy and able to ork on gettng his balace and stability back. 

That is about all that has been going on for now.. 

-Ciao!

No Real Update Yet, but Some Thoughts

I have a lot of friends on Facebook who have commented on my status updates about Charlotte and I am grateful for those words and people. Really I am. I know they mean well. Really I do. However, you are talking to a momma without her baby and telling her not to worry is kind of like telling the ocean to not be wet. Really it is. Worrying is a mom’s job. I do not have her home with me in my arms so yes I worry , when her numbers drop I rejoice but I worry that they will spike again. Like they did. When they spike I worry because I know that is not normal. See, I had 3 of 4 kids that had jaundice, including Charlotte. The others were over night or only a day or 2 stays at best. She is not.

There are other things going on here too that cause me to worry as well. I do not really discuss those on Facebook much because well… yeah. I do sometimes discuss them here and this is posted on my Facebook wall, but usually not every random game playing friend will read this, so I feel relatively safe talking about things here, not to mention it is my home and if I can’t talk about stuff here that affects the family where can I talk about it?

We are in dire need, but you would never know it. I am praying for a miracle every day and I know God is working in my life, but sometimes it is hard for me to sit still and wait. The incap pay from the military has not yet been approved that I know of. We ran into the holidays and I am not even sure it went to the board Friday. We need that money to pay the rent or we get evicted. I have to pay the bills or we have no lights or internet or food.

I am so not even ready for Charlotte to come home yet, I have no diapers for her or formula. I do have a WIC appointment on Dec. 8th but it is getting to that point. We have less that $10 in the bank at the moment. I am worried sick about all this stuff. Not to mention trying to recover from giving birth enough to take care of Jeff and deal with the house too. So much is piling up and sadly no we do not have family near by that can help. We do not really have many friends either. We are on our own. Which is hard in and of itself. So please pray or if you do not pray send some good thoughts our way cause we surely need them at this time. Oh yea, not to mention Christmas is around the corner. Sigh. I am just going to end this here before it gets to be a pity party.

-Ciao!

Ultrasound

Okay so Tuesday was my second ultrasound and also the redraw for the genetic testing. I should possibly have those results in a couple of weeks or so. So about August 7th. Which also happens to be M’s birthday!

I do have photos to add and I will at the end of the post. The ultrasound tech said she thinks it is a girl! So, Charlotte Elizabeth Gardner is on the way! We are both thrilled to pieces! However, we have absolutely nothing for a girl! My friend Becky is putting together an online baby shower for me because so many of my friends are in other states, which is nice of her!

I will post the link for the registries here too.. I found one site that will host all three registries so you can use Amazon, Walmart, or Target to get the things I have on my baby registries there. Which is so much easier than keeping track of all three!!

I do have to go back for a third ultrasound but not until September because baby Charlotte was laying on her spine and would not move for us! So, they have some other anatomy things they want to see as well and make sure she is growing well. As of right now everything is great! I have a doctor appointment on August 3rd and a dentist appointment next Monday. Not really looking forward to that, but I have to be healthy!

Jeff is doing well, starting to walk.. he has taken a total of 3 steps on his own so far and I was just shocked!!! As soon as he figures out how to do it again, I am in trouble! I am sort of looking forward to those days but not really. Time is flying by and he is growing up so fast! I miss the new born days with him, but he is his own little person and complete with a temper to match his red hair!

Profile- Ultrasound Picture