We got the flu at the beginning of January. Jeff was supposed to start school on the 10th which did not happen because of the aforementioned flu. Y’all, this flu thing is no joke. It is nasty and it hangs around for a long time. I was going to start Jeff in school on the 17th, but he was still having fevers, so we put it off another week. He did start on the 24th and he absolutely loves it! Which is a huge relief to us both. Of course next week he could totally hate it. Ya know, life with a toddler. I started him on a Wednesday because at his school Wednesdays are half days, so I figured it would be less traumatic for him that way. He had never really been away from us both at once before, so I was trying to ease him in.
Now he hates leaving school and this is his first weekend home since starting school. I am not sure how this will go because he loves school so much. Char asks about him randomly during the day when she realizes he is not there, but all in all, she is happy too because she gets to watch what she wants on the TV and gets all the adults to herself. Plus she gets to go more places too, so for her, it is excellent!
Actually, for us all, it has been excellent. I am so happy he is loving it. It makes therapy day so much easier! Plus he is meeting other kids and making friends and learning so much! The weather has not been wonderful lately, rain and cold. I do like that it gets plenty chilly here, I just occasionally miss the snow aspect. With the chilly weather though it is nice winter, just a lot of rain sometimes.
I am looking into getting Jeff some ABA behavioural therapy, which I feel would benefit him greatly. He is growing up so fast! I can not believe he will be four in March! I look at him sometimes and I just feel so sad because he is getting so big and soon will not fit on my lap anymore! Char had surgery yesterday. She had tubes put back in her ears and her adenoids removed. It was rather traumatic for her, but she is in good spirits today. Not quite herself yet, but getting there. She seemed to be a little bit warm today so we have been watching her. The nurses and doctor took great care of her and of course, everyone loved her! Well, I think that is all for now.
If things were not bad enough, this past Friday BOTH kids tested positive for the flu. Not only that but Jeff had been vomiting in the middle of the night when we started to give him some melatonin per his pediatrician. Mainly to help us get him on a schedule for school, which is all out the window now because I have to cancel every.single.appointment we all had this week so that I do not spread our flu germs to other people. I know, you are welcome. Jeff was due to start school on the 10th, which is now out the window. We had appointments every single day this week and now tomorrow I have to take time and call and reschedule everything. Char has had to go every single day and have blood drawn because of the fact she keeps running fevers. On Friday at the doctor’s she was 103. So, we had to drop Jeff and I at home, get Char comfortable, grab some things to keep her occupied and make her feel okay, then Mike had to take her to the ER. Someplace in there we are dinner. We were lucky that all the tests came back at or above her baselines, so she got to come home.
She has nasty bruises on her arms from getting blood drawn so much, so tomorrow morning I have to call the pediatrician and see if they can get her in, also beg them for no more blood until her poor arms heal because right now they are just hurting her over and over. Sigh. Both Mike and I are exhausted and sick too. I have to reschedule the sleep study. Ugh. I am so over this because I am tired and sick and all I wanna do is sleep. So, Mike and his mom are taking Char to see the hospital administrator so they can see what kind of shape her arms are in because the nurses do not want to listen to us when we tell them about her veins. She has small veins, to begin with, they are fragile, they roll, and they blow out so easily. It has been like this since she was born. We tell them, but then no one listens.
Jeff seems to be okay, he is the only one of us with any kind of energy. Hopefully, in a week or two we will be back to normal health-wise and be able to resume all activities. I am so tired so I leave you now.
We are all sick (except M, he has an amazing immune system). He took Charlotte to the ER last night about 11:30 pm and they admitted her to the Children’s Hospital after doing 2 breathing treatments and she was not better. She had 2 before that at home, so the total was up to 4. They put her on oxygen. I stayed home with our son because well, we are sick too and honestly I did not want to spread this any more than we had to. This morning I made calls to our appointments on Tuesday and Wednesday to cancel. M just called a bit ago and once the attending doctor comes in and looks at Charlotte they will possibly take her off the oxygen and then the timer is on, with watching her be sure her oxygen levels are stable. They want to watch her for 12-24 hours then they will release her. Hopefully, by tomorrow or Wednesday, she will be home. This has been super hard on us of course. Jeff is not taking this lightly. He was recently diagnosed as mild/moderate autistic. So, I am working on some things for him. Not a great time to be sick! Gotta run!
Yesterday I had my neurologist appointment. Finally. I waited months for that appointment and I sure was not going to miss it! My neurologist was sort of surprised to find out that I have had a migraine for five months. Every single day since Charlotte was born. Ugh. Before that it was at most 3-4 times a month. We discussed what my headaches feel like and look like. All the symptoms that I have with them. We talked about the medications I have tried, which is not many recently. My issues with migraine medications is that most of them make you zombie like or knock me out. I can not have that with the kids being home with me. I made that totally clear yesterday and we settled on a plan for the short term.
For the next month I am on Topamax 25mg for the first week, it is one pill at night. After the first week, it is 1 pill in the morning and at night. The office is to call me in a month to find out if it is working for me or not. If it is not we have talked about admitting me to the hospital for 2-3 days and giving me IV drugs to break the cycle. I am hoping to avoid that because honestly, yea. I am to the point that honestly I will do what ever it takes to get rid of this migraine or series of migraines. I honestly have no idea what it means to be headache free. I have no idea what it is like to wake up in the morning and feel good anymore.
I am so tired of being reactionary when it comes to these headaches of mine. Let me be clear, I have been diagnosed with migraines. Unless you have specific symptoms that come along with the headache, you have a headache and there are different kinds, but you do not have a migraine. One of my pet peeves is that someone who has not been diagnosed will say, oh I have a migraine. No. You have a headache. If you can take over the counter things, most likely you have headaches. Although Excedrin Migraine is pretty good, but it only works for me if I catch it really early.
I feel bad for my kids because they do not understand that mommy has migraines and is in constant pain. I want to feel good again so that I can do fun things with them. I have basically forced myself to keep moving because no one else is here to do it. I wish I could pull the covers up over my head and sleep it off. On the good side, I have lost 5 pounds. I am so hoping that Topamax is the right medication for me.
It has been a while since I have been here and honestly we have been uber busy with doctor appointments. Charlotte is having surgery on May 25th to get tubes in her ears to help drain the fluid on the left side. She has failed every single hearing test she has had on the left side since birth. Tubes to me are not a big deal, but the putting her to sleep part is, she is so little. Not sure how the anesthesia will affect her. Also, once they get the tubes in they will give her a final hearing test, if she fails that one, it is likely she has nerve hearing loss from the jaundice she had at birth. The doctor told me that kids with severe jaundice have much more likely chance to have nerve hearing loss. If that is the case, then we will have to discuss hearing aids for her.
The reason for the hearing aids at such a young age is because she is developing speech patterns now, so if she is deaf in one ear when she starts talking her speech patterns will not be correct and then we will have to go to a speech therapist. So, hopefully all this works out for the best and tubes work right away.
We had to change her formula again. She is having serious gas issues and still spitting up at 4 months old. If this formula does not work there is one more we can try. I am hoping that this works but so far she is still spitting up after almost a whole week on the new formula. We might have to go see a pediatric gastroenterologist. We are ruling things out one at a time, which is good, but frustrating!
Jeff turned two last month and he is amazing as ever, although some days extremely frustrating! He is definitely a two year old! We have good days and bad days with that and it sometimes seems like more bad than good lately. Hopefully, it will calm down soon.
M was released from physical therapy. He is happy but was frustrated too. He only had four months of physical therapy after surgery. Monday we are going to run some errands, one of is to get the documentation that he can return to work. We also have to take some of the unopened formula (the soy) to WIC to trade for the new formula. Also we have to go to the armory to get paperwork for the basic housing allowance for when M is gone to AT (annual training) for two weeks in August and then for three weeks in November he will be gone for three weeks for something else. Ugh. Not happy about that, but not like I can make them change it either.
So, keep your fingers crossed that the new formula works and everything is fine with Charlotte! I need to go do battle with the 2 year old, which me luck!
Yesterday they had taken Charlotte off the lights because her bilirubin number was down to 13, which was wonderful news. They were expecting a rebound in that number after that because without the lights the bilirubin builds back up. She rebounded to 13.4 last night. Which was not bad and she was still under 14.
This morning when we called to check on her, her bilirubin number was back up to 19, which is not good. She is back under lights again. She is eating well and having full diapers, which is a good sign because she is getting the bilirubin out of her body. But the large jump in number has me a bit worried. I have to go take care of some things, I will keep you all updated as I know more.
Newest pic of Jeff
We have been rather busy around here as of late! Okay, so I already mentioned the last doctor appointment in my last entry. Since then, I have added a dentist appointment on the 27th of July. So the week after my ultrasound. I am happy with that because I have been needing to see a dentist for a while and now I get to.
I have been having what is called round ligament pain. It is where the uterus and everything is stretching out to get into place for the new baby. It has been really painful this time around and has been really hampering my ability to get things done. According to the doctor that is the pain I have when I am walking. ugh. I am hoping that will end soon because honestly I am over it!
Our new bed is being delivered today! We are totally thrilled, let me tell you! M had to work mandatory overtime today because Amazon is having a Prime Day. Basically they are saying if you are a Prime member, there are all kinds of great deals today! Supposed to be better than Black Friday!
Jeff is showing us his mad problem solving skills as of late! Such a smart kid it is rather scary! The weather here is nasty today with pretty bad storms moving through already. Had some bad ones yesterday and the day before as well. Flash flood warnings and watches in effect now too..
I changed Jeff’s doctor to the place where I am going this last week. His old doctor was about 1/2 mile from the bus stop and right now that is not doable for me at all. So the place I go does pediatrics and they are right across the street from the bus stop, so that works out better for us now. As soon as I get his new cards, I will be making an appointment for him.
I am tired so I am going to try and rest while there is a break in the storms.. Jeff is finally back to sleep.