Sick

We are all sick (except M, he has an amazing immune system). He took Charlotte to the ER last night about 11:30 pm and they admitted her to the Children’s Hospital after doing 2 breathing treatments and she was not better. She had 2 before that at home, so the total was up to 4. They put her on oxygen. I stayed home with our son because well, we are sick too and honestly I did not want to spread this any more than we had to. This morning I made calls to our appointments on Tuesday and Wednesday to cancel. M just called a bit ago and once the attending doctor comes in and looks at Charlotte they will possibly take her off the oxygen and then the timer is on, with watching her be sure her oxygen levels are stable. They want to watch her for 12-24 hours then they will release her. Hopefully, by tomorrow or Wednesday, she will be home. This has been super hard on us of course. Jeff is not taking this lightly. He was recently diagnosed as mild/moderate autistic. So, I am working on some things for him. Not a great time to be sick! Gotta run! 

-Ciao!

Happenings

We have officially moved. If you do not follow me on Facebook, then you most likely did not know. We moved into a 2 bedroom, 1.5 bath townhouse. It was not what we were looking for, but it was in a way perfect. The stairs might kill me in the end, but it is a great exercise I guess. We do have baby gates, three in fact. One at the top of the stairs, one at the bottom of the stairs and one to keep the munchkins out of the kitchen. Our new stove is gas, so the knobs for the stove are within Jeff’s reach, a definite no-no. Speaking of Jeff he will be three later this month! I can not believe that!! 

He is doing really wonderful in speech and is now saying momma consistently, which thrills this momma to no end! We are working on other words many times a week and he is learning at a fast pace! He has an occupational therapy eval coming up soon, so I am sure that will help too. He is not really doing well with all the changes that have happened as of late. Moving and new house. It has been rough on all of us especially him. 

Charlotte is doing fantastic too! She is learning to come down the stairs in a safe way. She has no issues getting up, but getting down is a problem for her. She has started using a fork sometimes. She has trouble but is getting the hang of it. 

M lost his job this past Wednesday. It has been hard on us having just moved and all, but we are surviving. He has applied for unemployment already and put some resumes in for a few jobs already. The story behind the termination is a stupid one, but for right now I can not get into that. 

We still need a few things for the house, like a storage thing for the kitchen for extra can goods and pans. I have a solution until we can find something that I like and we can afford. It will not be perfect but should help some. Another thing we need is a table to eat at. right now we are all sitting in the living room on the floor. I do have our first real adult dresser coming from Ikea, which we bought before the job thing. We got the kids their own beds, which are in the process of being put together. 

I have started a new business. I am now selling Pampered Chef. Which I love! The Facebook business page is here. My Pampered Chef website is here. I am doing my launch party now, so if you or anyone you know needs anything, let me know! Well, I am gonna go, so much to do today! 

-Ciao!

Rough Ride

Life here has been really busy as of late. A lot of doctor appointments for Charlotte as later this month she will be turning a year old! Coming in the next week or two we have a major hearing test, an ear doctor appointment, physical therapy sessions, and then there are other doctor appointments in the beginning of next month because her birthday falls on Black Friday this year! 

Getting to this point has been a very long road. I honestly was not sure if we would ever get here. With so many different health concerns and doctors, I am very proud of where we are these days. She is finally making her own red blood cells, which means that the blood doctor appointments are being pushed out two months and not every month like we had been doing. Her heart doctor did not want to see her back for a year. If we can pass this hearing test coming up, hopefully, that doctor will not want to see her for a good while too! 

It has been a rough ride for us here. Jeff has no idea what has been going on just that something has been going on. It is difficult to explain all this to a two-year-old. He is still not really communicative, although he has started to say ‘Da’ and ‘Ma’. Which is great progress! I am hoping to get him in for an evaluation sometime this month  too. He will go to where Charlotte gets her physical therapy done. People ask me why he is not in daycare or in a tots program, well because he does not talk mainly. I think it would be beyond frustrating for those people and for him as well if no one knew what he needed. I just do not want to put him or them through that. 

Charlotte has come so far in a few months! She is doing so many things that she could not do before physical therapy. Now we have an appointment for First Steps to come in and give her some therapy here as well as going to physical therapy. Which I am sure can do nothing but help her! I am hoping to see her crawling soon. She has not mastered that quite yet and I can’t wait to see it happen. She is getting so big! We are giving her table food nowadays because she refuses to eat baby food and she is doing really well with that. She has three teeth in already and I am sure there are more trying to pop in soon! I am just in awe of my little girl. She has been through so much in her short little life and she is still her smiley self every day! I can learn a lot from her for sure. 

My business is doing well. It has been a struggle to get it started for sure. I had a goal of making $99 in October since I got a late start and I met that goal! So, for November I have a goal of $250 and I am working it! I love selling Origami Owl.I Have a facebook party already booked for this month and I am looking for more! So, if you know someone who wants to host send her my way! Oh and if you book with me before Nov. 18th I am throwing in a special free gift just for you! You can find more information here https://tawnyagardner.origamiowl.com 

Enter No Pain Relief…

Most of the people I have known for longer than 5 minutes know that I have suffered from horrible, painful, sometimes debilitating migraines. For those of you who do not suffer from these horrible things, I would not wish them on you ever. I finally got M to quit saying he has a migraine when all he has is a headache. He never understood the difference, he thought, like many do that migraines are just bad headaches. They are not. Migraine is a neurological disease. I am new to this concept myself.

I switched meds recently after a phone call from my neurologist on last Tuesday. He called on a day where I had a level 10 migraine. I could not focus on our conversation. I forgot what I had already said to him and repeated myself several times in the span of a five minute conversation. So, much so he wants me to get an MRI done to find out why my migraines have changed so drastically after the birth of my daughter, Charlotte.

Some days my pain is manageable. Of course my manageable and yours might be slightly different. I am able to function with pain up to a level of about 8.5 or so. Now, that does not mean I am doing things well. I am not, I am just barely able to get things done. When I am at this level of pain, my brain is in a severe fog and I will forget what I am supposed to do or even what I have done already. Even if it has been only about five minutes. For me, the brain fog is the worst thing ever because I pride myself on my memory and the ability to know what I need to get done. Some days, honestly, I can not remember my own address or phone number.

Some of my other symptoms of my migraines are: sensitivity to light, sounds, smells, and even it can hurt to touch me. Lately, I have been dropping things more than usual as well. Which kind of is a bad thing when you have an infant who can not get from one place to another without me picking her up and moving her. Those times, I take it nice and easy making sure I have her wrapped in my arms and not in my hands. I also have been more clumsy than usual , tripping over my own two feet more than normal, tripping over small things that normally would not bother me, and tripping over nothing essentially.

There are days that I make it through the day okay and I seem okay and then there are those days that I made it through the day and wonder how on Earth I made it through. We are supposed to go grocery shopping this evening, doing that for me depends on where my pain level is at that point. It is not unusual for me to not go at the last minute because my head hurts so bad I can not take it. Sometimes, I force myself to go anyway and those days are horrible.

I feel bad for my kids because most days I am not the fun mom. My kids are too young to understand what is going on with me. My two year old does know that sometimes mommy is in pain and he will rub my head to make me feel better, which makes my heart melt and breaks it all at the same time. Today I have to wash the comforters on the bed. It has been a while since I have done that. The problem is that the wash cycle is forty-five minutes long and I will forget what I was doing and it will sit and get all icky smelling.. so I have to try and focus on that. It is hard to do when you have two small kids needing stuff all the time..

Laundry is calling.

-Ciao!

Neurologist Visit

Yesterday I had my neurologist appointment. Finally. I waited months for that appointment and I sure was not going to miss it! My neurologist was sort of surprised to find out that I have had a migraine for five months. Every single day since Charlotte was born. Ugh. Before that it was at most 3-4 times a month. We discussed what my headaches feel like and look like. All the symptoms that I have with them. We talked about the medications I have tried, which is not many recently. My issues with migraine medications is that most of them make you zombie like or knock me out. I can not have that with the kids being home with me. I made that totally clear yesterday and we settled on a plan for the short term.

For the next month I am on Topamax 25mg for the first week, it is one pill at night. After the first week, it is 1 pill in the morning and at night. The office is to call me in a month to find out if it is working for me or not. If it is not we have talked about admitting me to the hospital for 2-3 days and giving me IV drugs to break the cycle. I am hoping to avoid that because honestly, yea. I am to the point that honestly I will do what ever it takes to get rid of this migraine or series of migraines. I honestly have no idea what it means to be headache free. I have no idea what it is like to wake up in the morning and feel good anymore.

I am so tired of being reactionary when it comes to these headaches of mine. Let me be clear, I have been diagnosed with migraines. Unless  you have specific symptoms that come along with the headache, you have a headache and there are different kinds, but you do not have a migraine. One of my pet peeves is that someone who has not been diagnosed will say, oh I have a migraine. No. You have a headache. If  you can take over the counter things, most likely you have headaches. Although Excedrin Migraine is pretty good, but it only works for me if I catch it really early.

I feel bad for my kids because they do not understand that mommy has migraines and is in constant pain. I want to feel good again so that I can do fun things with them. I have basically forced myself to keep moving because no one else is here to do it. I wish I could pull the covers up over my head and sleep it off. On the good side, I have lost 5 pounds. I am so hoping that Topamax is the right medication for me.