I know, witty title, right? Gotta give a girl a break, okay? I recently found out that I have sleep apnea. I will have to use a CPAP machine. For those who have no idea what this is, it is a machine that blows air into my lungs so that I do not stop breathing at night. I will pick my machine up on May 1st. At first, I was really reluctant about this. I never thought that I could or would have sleep apnea, but I did a sleep study at the beginning of March and let me tell you, the video that they show you with supposedly real people saying it was easy, they are lying. Lies all lies. One guy even said he slept better during his study than he does at home. LIES I say! The longer I have had to wait for the results, which happened in the beginning of April and now waiting to get approved for the machine, I have thought about this. Right now, my sleep is horrible. I mean I wake up so tired that I need a nap after I have been up for like two hours. Apparently, I stop breathing 30 times per hour and my oxygen saturation drops to 56%. Ya’all that is seriously and dangerously low. Your oxygen saturation should always be in the 90s. So, thinking about all of this, I decided that I am going to just suck it up and deal with it. I will use the machine. It will help me in the long run.
I was on a good run of not being sick, but I got sick this past Sunday. I had a doctor appointment that had been scheduled for Thursday, so I guess it was good timing? I am back on the steroid taper again, I feel that should be a song sung to the tune of ‘On the Road Again’. Someone make that happen. I am also hooked up with an app on my phone and sensors on my inhalers that show when I use them. Right now, it is only on my rescue inhaler because they changed the size of my Qvar inhaler and the sensor does not fit on it. I have been hitting that rescue inhaler like it is an oxygen mask this last week. My asthma doc will not be pleased. The app is through Propeller Health. If you have an asthma doc, ask about it. The sensors were free, you just have to sign up and download the app, sign in to the app and they send you your sensors. You can also track other meds you are taking for your asthma too. It is pretty cool because I was looking for something like this to help keep me on track.
I have a massive amount to do with Social Security. I have to call them Monday and see if I can make an appointment for it all. I feel like it might be a day trip or something. Ugh. I do not like spending time in places like that because if someone is sick there I will wind up with it. I can not wait any longer, so I just have to deal and get it all done. The beginning of May is looking like I am not gonna have much free time at all, which sucks. The first three days of the month are totally booked. I was able to move one May appointment to June, so there is that. I am really tired, so I am gonna run.
It has been a while since I wrote here . Alot has gone on in the last few months and I am trying to wrap my head around it. I am so very tired these days because we all have been sick again. It is the fourth time this year already and I want to scream ! Charlotte has been doing well. Jeff is exploding with language. It seems there is a new word or phrase everyday!
yes I said phrase. he is finally putting words together. We ate so very proud of him. In October we have to take a trip to San Francisco to see a neurologist /apraxia specialist for him. Apraxia is where your brain does not communicate with your jaw muscles. some seem to think this is the only issue he has, which if it is true would be a blessing. however, I think it is more than that. So we will see.
at the moment I am writing this on my phone so sorry for the grammar mistakes. I need to run. Ciao !
I am struggling. I wish I could say that everything is all peachy and that California is perfect. It’s not. It is amazing in its own way and I love being here. I do love Woodland, but I fear that we will have to move some place else eventually because I am not sure if it is big enough for us all. Life for me has lost the color and texture it normally has. I am fighting every single day to just get up and take care of the kids. I am so tired at the end of the day and when M comes home from class early I rejoice inside because I can sleep. I really wish that I could say that I am sleeping more because the time change is hurting me, but we all know that would be a lie.
I am not sure why I am struggling so much right now, but I have been. M is still looking for work. I have doctors for the kids, they are all amazing. I am really seriously blessed in that their primary care doctor is uber amazing and understanding. I was really worried about that. I have a great doctor myself and I see her Thursday. I think I know what she will say and honestly I dread it but at the same time, I am looking forward to it also.
There is a lot of stuff happening behind the scenes that I can not yet talk about. I just wanted you all to know I am not dead yet. Just struggling to get every day done. I am hoping to be back normally soon, but I am not sure what toll this will take on me yet.
We have been doing really well in California. M has not found a job just yet, but we have applied and been approved for everything we can get. Both kids have been to the doctor and we are in the midst of getting referrals sorted and appointments made. Jeff has an appointment for a hearing test and for his ABA therapy. Charlotte was just seen this past Monday and we have referrals going out to all the various doctors we had in Kentucky and adding an eye doctor because she has a lazy eye now and a dentist. Ugh. Poor girl can not catch a break. They also talked about getting an ultrasound done on her spleen so we have a baseline of what it is supposed to look like. She also needs baseline blood work done, hopefully, we can get that done next week sometime.
I also have been to the doctor, yesterday actually. I have a mammogram scheduled, a hearing test to be scheduled for me, and all-encompassing blood work for me too. We have been sick for the last week or so and it hit us ALL pretty hard. I got a library card for myself and when we go back I am getting one for Jeff as well. He wants his own, so I am making a pretty big deal out of it! They both are signed up for the summer reading program here. They both have already won a book or board book of their choice, a pizza coupon, and a toy. So they are doing really well. It helps me too because now I am more conscious of reading to them. They love logging the books and seeing the points go up!
I am so tired right now, I just wanted you all to know we have not fallen off the face of the Earth!
We are all sick (except M, he has an amazing immune system). He took Charlotte to the ER last night about 11:30 pm and they admitted her to the Children’s Hospital after doing 2 breathing treatments and she was not better. She had 2 before that at home, so the total was up to 4. They put her on oxygen. I stayed home with our son because well, we are sick too and honestly I did not want to spread this any more than we had to. This morning I made calls to our appointments on Tuesday and Wednesday to cancel. M just called a bit ago and once the attending doctor comes in and looks at Charlotte they will possibly take her off the oxygen and then the timer is on, with watching her be sure her oxygen levels are stable. They want to watch her for 12-24 hours then they will release her. Hopefully, by tomorrow or Wednesday, she will be home. This has been super hard on us of course. Jeff is not taking this lightly. He was recently diagnosed as mild/moderate autistic. So, I am working on some things for him. Not a great time to be sick! Gotta run!
We have officially moved. If you do not follow me on Facebook, then you most likely did not know. We moved into a 2 bedroom, 1.5 bath townhouse. It was not what we were looking for, but it was in a way perfect. The stairs might kill me in the end, but it is a great exercise I guess. We do have baby gates, three in fact. One at the top of the stairs, one at the bottom of the stairs and one to keep the munchkins out of the kitchen. Our new stove is gas, so the knobs for the stove are within Jeff’s reach, a definite no-no. Speaking of Jeff he will be three later this month! I can not believe that!!
He is doing really wonderful in speech and is now saying momma consistently, which thrills this momma to no end! We are working on other words many times a week and he is learning at a fast pace! He has an occupational therapy eval coming up soon, so I am sure that will help too. He is not really doing well with all the changes that have happened as of late. Moving and new house. It has been rough on all of us especially him.
Charlotte is doing fantastic too! She is learning to come down the stairs in a safe way. She has no issues getting up, but getting down is a problem for her. She has started using a fork sometimes. She has trouble but is getting the hang of it.
M lost his job this past Wednesday. It has been hard on us having just moved and all, but we are surviving. He has applied for unemployment already and put some resumes in for a few jobs already. The story behind the termination is a stupid one, but for right now I can not get into that.
We still need a few things for the house, like a storage thing for the kitchen for extra can goods and pans. I have a solution until we can find something that I like and we can afford. It will not be perfect but should help some. Another thing we need is a table to eat at. right now we are all sitting in the living room on the floor. I do have our first real adult dresser coming from Ikea, which we bought before the job thing. We got the kids their own beds, which are in the process of being put together.
I have started a new business. I am now selling Pampered Chef. Which I love! The Facebook business page is here. My Pampered Chef website is here. I am doing my launch party now, so if you or anyone you know needs anything, let me know! Well, I am gonna go, so much to do today!
It occurs to me that I have not done an entry here since the beginning of November! A lot has happened since that time! Not sure where exactly to begin because honestly, I would be here typing all night! LOL. So, Charlotte turned 1 on Black Friday! She is doing really good right now. I mentioned the big hearing test coming up and guess what?!?! SHE PASSED IT ON BOTH SIDES!! She is hearing on her left side perfectly now and has absolutely no need for the hearing aid! Thank you for all the prayers and well wishes, it totally worked!
As for her blood doctor, we are now six months out for those appointments, she had the most recent one on December 2nd and it is in fact, confirmed that she is making red blood cells on her own! YAY! She is continuing with physical therapy and is crawling on all fours consistently now, so we are working on the walking part now. I am so excited for her! She has also started speech and occupational therapy as well this month. She is doing well in both of those. We are teaching her to sign in speech so that her needs get met and I know what she needs instead of guessing.
Jeff also had his speech evaluation and we are progressing with a combination of sign language and pictures to communicate with him. In the new year, I will be making an appointment with his pediatrician to find out how to get him tested for Autism. Once we know what we are up against, we can make plans and move forward.
M got hurt at work on the same knee he had surgery on last year. It seems that we are destined to be in fire mode! He is fine and they sent him back to work this past Wednesday. He was out of work for a couple of weeks and it was very stressful for us and especially when it is near Christmas! Christmas will be pretty lean this year but our family has helped out and the kids will have a few things to open, so that is good! A church here in town brought us all we need for Christmas Dinner and breakfast too! Which was a major blessing! I have not been sleeping well because we are back on M’s work schedule and he is working 60 hours a week and is gone before 6:30 am in the mornings, which is hard on me because Jeff lately has been not going to bed until midnight or 1 am. Not sure what is going on with him, hoping it stops soon!
Well, I think that is all I have right now! If I do not get back here before Christmas, have a Merry Christmas! (if you celebrate) if you do not, Happy Holidays!