So, most of you know that I have been battling to get my son diagnosed properly. We had a blow to that process earlier this year, but that was trumped yesterday. I will take you behavioral psychologist and raise you a pediatric neurologist! I win! I know it seems petty, but when two (2) pediatricians with their own Autistic kids have BOTH said my son is Autistic and then this woman undoes all that with one report, it really irritated me. Especially when she notes some of his autistic behavior in said report, but no it is not Autism. It is Apraxia, something that honestly no one I have spoken to even knew about!
Well, all this changed yesterday with our trip to San Francisco. We went to see a pediatric neurologist for Jeff because of the diagnosis of Apraxia. Which he does not have. He is Autistic and meets the requirements for being diagnosed as such. So, today with a letter from this neurologist in hand, I called the school district to get the process started. He has an appointment at 3pm there to be evaluated.
Also, had to reschedule a WIC appointment because we were all so very ill and missed it. Which is that day but earlier. Charlotte starts her speech therapy on Monday and the Infant specialist is coming on Tuesday. Also, got her 2 years well check scheduled. Made a few other calls to get some information on help for a few things we need. Mike did well at his post office interview in West Sacremento today and now we are waiting on an email for him to get drug tested and his background check. We have to get Jeff some blood work done, some of it is genetic testing that is in depth so it will not be back for a couple of months. We are moving forward with all this stuff. Somedays I feel like I am standing in place though. I am so very tired and bone weary of most stuff going on.
I missed counseling for 2 weeks because we were really sick and go back on Monday afternoon. I am so looking forward to that! I need to get back on schedule for my meds too because of nausea I had stopped taking them, so now it is time to start again. Right now life is busy and overwhelming. I need to run..
It has been a while since I wrote here . Alot has gone on in the last few months and I am trying to wrap my head around it. I am so very tired these days because we all have been sick again. It is the fourth time this year already and I want to scream ! Charlotte has been doing well. Jeff is exploding with language. It seems there is a new word or phrase everyday!
yes I said phrase. he is finally putting words together. We ate so very proud of him. In October we have to take a trip to San Francisco to see a neurologist /apraxia specialist for him. Apraxia is where your brain does not communicate with your jaw muscles. some seem to think this is the only issue he has, which if it is true would be a blessing. however, I think it is more than that. So we will see.
at the moment I am writing this on my phone so sorry for the grammar mistakes. I need to run. Ciao !
I am struggling. I wish I could say that everything is all peachy and that California is perfect. It’s not. It is amazing in its own way and I love being here. I do love Woodland, but I fear that we will have to move some place else eventually because I am not sure if it is big enough for us all. Life for me has lost the color and texture it normally has. I am fighting every single day to just get up and take care of the kids. I am so tired at the end of the day and when M comes home from class early I rejoice inside because I can sleep. I really wish that I could say that I am sleeping more because the time change is hurting me, but we all know that would be a lie.
I am not sure why I am struggling so much right now, but I have been. M is still looking for work. I have doctors for the kids, they are all amazing. I am really seriously blessed in that their primary care doctor is uber amazing and understanding. I was really worried about that. I have a great doctor myself and I see her Thursday. I think I know what she will say and honestly I dread it but at the same time, I am looking forward to it also.
There is a lot of stuff happening behind the scenes that I can not yet talk about. I just wanted you all to know I am not dead yet. Just struggling to get every day done. I am hoping to be back normally soon, but I am not sure what toll this will take on me yet.
We have been doing really well in California. M has not found a job just yet, but we have applied and been approved for everything we can get. Both kids have been to the doctor and we are in the midst of getting referrals sorted and appointments made. Jeff has an appointment for a hearing test and for his ABA therapy. Charlotte was just seen this past Monday and we have referrals going out to all the various doctors we had in Kentucky and adding an eye doctor because she has a lazy eye now and a dentist. Ugh. Poor girl can not catch a break. They also talked about getting an ultrasound done on her spleen so we have a baseline of what it is supposed to look like. She also needs baseline blood work done, hopefully, we can get that done next week sometime.
I also have been to the doctor, yesterday actually. I have a mammogram scheduled, a hearing test to be scheduled for me, and all-encompassing blood work for me too. We have been sick for the last week or so and it hit us ALL pretty hard. I got a library card for myself and when we go back I am getting one for Jeff as well. He wants his own, so I am making a pretty big deal out of it! They both are signed up for the summer reading program here. They both have already won a book or board book of their choice, a pizza coupon, and a toy. So they are doing really well. It helps me too because now I am more conscious of reading to them. They love logging the books and seeing the points go up!
I am so tired right now, I just wanted you all to know we have not fallen off the face of the Earth!
We are all sick (except M, he has an amazing immune system). He took Charlotte to the ER last night about 11:30 pm and they admitted her to the Children’s Hospital after doing 2 breathing treatments and she was not better. She had 2 before that at home, so the total was up to 4. They put her on oxygen. I stayed home with our son because well, we are sick too and honestly I did not want to spread this any more than we had to. This morning I made calls to our appointments on Tuesday and Wednesday to cancel. M just called a bit ago and once the attending doctor comes in and looks at Charlotte they will possibly take her off the oxygen and then the timer is on, with watching her be sure her oxygen levels are stable. They want to watch her for 12-24 hours then they will release her. Hopefully, by tomorrow or Wednesday, she will be home. This has been super hard on us of course. Jeff is not taking this lightly. He was recently diagnosed as mild/moderate autistic. So, I am working on some things for him. Not a great time to be sick! Gotta run!
We have officially moved. If you do not follow me on Facebook, then you most likely did not know. We moved into a 2 bedroom, 1.5 bath townhouse. It was not what we were looking for, but it was in a way perfect. The stairs might kill me in the end, but it is a great exercise I guess. We do have baby gates, three in fact. One at the top of the stairs, one at the bottom of the stairs and one to keep the munchkins out of the kitchen. Our new stove is gas, so the knobs for the stove are within Jeff’s reach, a definite no-no. Speaking of Jeff he will be three later this month! I can not believe that!!
He is doing really wonderful in speech and is now saying momma consistently, which thrills this momma to no end! We are working on other words many times a week and he is learning at a fast pace! He has an occupational therapy eval coming up soon, so I am sure that will help too. He is not really doing well with all the changes that have happened as of late. Moving and new house. It has been rough on all of us especially him.
Charlotte is doing fantastic too! She is learning to come down the stairs in a safe way. She has no issues getting up, but getting down is a problem for her. She has started using a fork sometimes. She has trouble but is getting the hang of it.
M lost his job this past Wednesday. It has been hard on us having just moved and all, but we are surviving. He has applied for unemployment already and put some resumes in for a few jobs already. The story behind the termination is a stupid one, but for right now I can not get into that.
We still need a few things for the house, like a storage thing for the kitchen for extra can goods and pans. I have a solution until we can find something that I like and we can afford. It will not be perfect but should help some. Another thing we need is a table to eat at. right now we are all sitting in the living room on the floor. I do have our first real adult dresser coming from Ikea, which we bought before the job thing. We got the kids their own beds, which are in the process of being put together.
I have started a new business. I am now selling Pampered Chef. Which I love! The Facebook business page is here. My Pampered Chef website is here. I am doing my launch party now, so if you or anyone you know needs anything, let me know! Well, I am gonna go, so much to do today!
Lately, we have been under a lot of stress and so much going on at one time. I am honestly tired and ready to just throw in the towel. Since I have never been one to give up easily that is a foreign concept to me. Although, I am angry for a couple of reasons. The first one being that we have been looking for a place to live once our lease is up here. We *thought* we had the perfect place picked out. Even had an appointment to go and look at an apartment in this place last Tuesday. Get there and the office is closed for a medical emergency. Now I am not heartless, I understand emergencies quite well because we had another appointment the week before set and Charlotte had to go to the doctor that day because of a fever and throwing up (more on that later in the entry). The difference between the lady that runs this office and us is that we emailed her (she rarely answers the phone when you call in the first place) to tell her that we would not be there and why. When she had her issue, no email no phone call, just sorry about your luck. We called her on Thursday to see if we could go up that day or Friday to look at the apartment she had and all of a sudden she has nothing available and will have something again in mid-March. We had been talking to this lady since the end of January. She knew our time frame. We both were so annoyed and angry that she just strung us along all this time when we could have been looking at other places. Mind you it is hard to find affordable living here because of the horse money.
Yesterday we looked at two different places and filled out the applications for both. The one place I liked a lot and the second one is small. Like not sure my king sized bed will fit in the master bedroom small. Now it is a waiting game to see which application comes back first. The place I liked is here and it looks amazing. I think it is mostly a place for college kids but it is under new management that is not our current management company here where we are now. I think they are trying to get more families in there to offset the issues that were there before the new management. The second place is here and we are looking at the 2 bedroom formal here.
Back to why Charlotte had to go to the doctor, she was wheezing pretty badly so they gave her a nebulizer and she is on Albuterol as needed for wheezing. I have asthma and I am worried that this is the beginning of that with Charlotte. Also, the older kids both have asthma and Katie had it this young too. So you can see why I am concerned. I am glad they gave her a nebulizer. The bill came in the mail yesterday so I have to call them Monday to give the insurance information. She hates the breathing treatments but who doesn’t? She is fine until the meds start coming into the mask and then she starts crying. Although she will hold the mask over her face and cry. LOL.
I have done mountains and mountains of laundry lately. I have 4 bags of stuff to donate to the Salvation Army as well as some bigger items. Charlotte is doing amazing with physical therapy and is walking some. We are working with her to catch up to her age group and I am happy to report that she is almost there!! Jeff is going to speech therapy and occupational therapy has been suggested, so after we get moved I will get an OT eval done for him too. His speech therapist did say that she did notice some of the things I am concerned about, but since insurance is paying for services without an issue right now, a diagnosis is not a concern. Although a lot of doctors want to wait until at least four to evaluate and I am comfortable with that for the moment because he is getting help now. We could possibly be adding an orthopedist to Charlotte’s medical team. She is having issues with one foot while walking, so we are getting her some shoes first to see if that helps with the issue or if she might need a brace for her leg. Ugh. Life sure is complicated sometimes!
I have more laundry to fold and sort, so I am going to go! Hope you have a wonderful day! I am hoping that when I post again I will be doing so from our new home!!