If things were not bad enough, this past Friday BOTH kids tested positive for the flu. Not only that but Jeff had been vomiting in the middle of the night when we started to give him some melatonin per his pediatrician. Mainly to help us get him on a schedule for school, which is all out the window now because I have to cancel every.single.appointment we all had this week so that I do not spread our flu germs to other people. I know, you are welcome. Jeff was due to start school on the 10th, which is now out the window. We had appointments every single day this week and now tomorrow I have to take time and call and reschedule everything. Char has had to go every single day and have blood drawn because of the fact she keeps running fevers. On Friday at the doctor’s she was 103. So, we had to drop Jeff and I at home, get Char comfortable, grab some things to keep her occupied and make her feel okay, then Mike had to take her to the ER. Someplace in there we are dinner. We were lucky that all the tests came back at or above her baselines, so she got to come home.
She has nasty bruises on her arms from getting blood drawn so much, so tomorrow morning I have to call the pediatrician and see if they can get her in, also beg them for no more blood until her poor arms heal because right now they are just hurting her over and over. Sigh. Both Mike and I are exhausted and sick too. I have to reschedule the sleep study. Ugh. I am so over this because I am tired and sick and all I wanna do is sleep. So, Mike and his mom are taking Char to see the hospital administrator so they can see what kind of shape her arms are in because the nurses do not want to listen to us when we tell them about her veins. She has small veins, to begin with, they are fragile, they roll, and they blow out so easily. It has been like this since she was born. We tell them, but then no one listens.
Jeff seems to be okay, he is the only one of us with any kind of energy. Hopefully, in a week or two we will be back to normal health-wise and be able to resume all activities. I am so tired so I leave you now.
I have always felt kind of left out on Christmas. I am adopted as most of you well know and I always struggled with the holidays. I always felt like a third wheel on a date. I know that my family never intended it that way and they never actively made me feel that way, but I always did. My cousin and her mom got along really well. When I was a kid, me and my mom, not so much. I am not airing family laundry here, everyone knows that my mom and I were better off far apart. Back to what I was saying, I always felt, I am not exactly sure how to put it in words, but the closest I can is left out. Everyone had family that they belonged to and I never really felt like I belonged to mine. Ever. I tried talking about this with the numerous counselors I went to as a kid, but no one ever helped me deal with that feeling. So, carrying this feeling into adulthood, made me kind of meh over the holidays. When my two older kids were little, I tried so hard. I would put up a tree and we would decorate. Put lights up around the house. Mostly because I wanted everything to be somewhat normal for them. I never really saw the point of it, but when I saw their smiling faces looking at the tree and all the lights, I went with it.
My kids now are young and they have no idea yet what Christmas is. This was the first year we had a tree. We are staying at the in-laws’ house so they put a tree up and lights and I saw those smiles and wonderment in the eyes again, so I know this was basically the last year that we can not do anything. So, here is to hope that this next year is a lot better than this one because honestly, I am not sure how much more we can take as a family.
This year Christmas was good for the kids, mostly because of my mom and the other family we have. I was so appreciative because the last few years have been horribly lean at Christmas. This year Charlotte got overwhelmed at how many gifts she had to open this year. It was a sight to behold. Jeff loved ripping the paper off and shredding the bows like any little boy would. We had a good time Christmas morning. It made my heart lighter like it used to with the older kids. Hope your Christmas was good. I need to go take some meds and lay down!
So, most of you know that I have been battling to get my son diagnosed properly. We had a blow to that process earlier this year, but that was trumped yesterday. I will take you behavioral psychologist and raise you a pediatric neurologist! I win! I know it seems petty, but when two (2) pediatricians with their own Autistic kids have BOTH said my son is Autistic and then this woman undoes all that with one report, it really irritated me. Especially when she notes some of his autistic behavior in said report, but no it is not Autism. It is Apraxia, something that honestly no one I have spoken to even knew about!
Well, all this changed yesterday with our trip to San Francisco. We went to see a pediatric neurologist for Jeff because of the diagnosis of Apraxia. Which he does not have. He is Autistic and meets the requirements for being diagnosed as such. So, today with a letter from this neurologist in hand, I called the school district to get the process started. He has an appointment at 3pm there to be evaluated.
Also, had to reschedule a WIC appointment because we were all so very ill and missed it. Which is that day but earlier. Charlotte starts her speech therapy on Monday and the Infant specialist is coming on Tuesday. Also, got her 2 years well check scheduled. Made a few other calls to get some information on help for a few things we need. Mike did well at his post office interview in West Sacremento today and now we are waiting on an email for him to get drug tested and his background check. We have to get Jeff some blood work done, some of it is genetic testing that is in depth so it will not be back for a couple of months. We are moving forward with all this stuff. Somedays I feel like I am standing in place though. I am so very tired and bone weary of most stuff going on.
I missed counseling for 2 weeks because we were really sick and go back on Monday afternoon. I am so looking forward to that! I need to get back on schedule for my meds too because of nausea I had stopped taking them, so now it is time to start again. Right now life is busy and overwhelming. I need to run..
It has been a while since I wrote here . Alot has gone on in the last few months and I am trying to wrap my head around it. I am so very tired these days because we all have been sick again. It is the fourth time this year already and I want to scream ! Charlotte has been doing well. Jeff is exploding with language. It seems there is a new word or phrase everyday!
yes I said phrase. he is finally putting words together. We ate so very proud of him. In October we have to take a trip to San Francisco to see a neurologist /apraxia specialist for him. Apraxia is where your brain does not communicate with your jaw muscles. some seem to think this is the only issue he has, which if it is true would be a blessing. however, I think it is more than that. So we will see.
at the moment I am writing this on my phone so sorry for the grammar mistakes. I need to run. Ciao !
I am struggling. I wish I could say that everything is all peachy and that California is perfect. It’s not. It is amazing in its own way and I love being here. I do love Woodland, but I fear that we will have to move some place else eventually because I am not sure if it is big enough for us all. Life for me has lost the color and texture it normally has. I am fighting every single day to just get up and take care of the kids. I am so tired at the end of the day and when M comes home from class early I rejoice inside because I can sleep. I really wish that I could say that I am sleeping more because the time change is hurting me, but we all know that would be a lie.
I am not sure why I am struggling so much right now, but I have been. M is still looking for work. I have doctors for the kids, they are all amazing. I am really seriously blessed in that their primary care doctor is uber amazing and understanding. I was really worried about that. I have a great doctor myself and I see her Thursday. I think I know what she will say and honestly I dread it but at the same time, I am looking forward to it also.
There is a lot of stuff happening behind the scenes that I can not yet talk about. I just wanted you all to know I am not dead yet. Just struggling to get every day done. I am hoping to be back normally soon, but I am not sure what toll this will take on me yet.
We have been doing really well in California. M has not found a job just yet, but we have applied and been approved for everything we can get. Both kids have been to the doctor and we are in the midst of getting referrals sorted and appointments made. Jeff has an appointment for a hearing test and for his ABA therapy. Charlotte was just seen this past Monday and we have referrals going out to all the various doctors we had in Kentucky and adding an eye doctor because she has a lazy eye now and a dentist. Ugh. Poor girl can not catch a break. They also talked about getting an ultrasound done on her spleen so we have a baseline of what it is supposed to look like. She also needs baseline blood work done, hopefully, we can get that done next week sometime.
I also have been to the doctor, yesterday actually. I have a mammogram scheduled, a hearing test to be scheduled for me, and all-encompassing blood work for me too. We have been sick for the last week or so and it hit us ALL pretty hard. I got a library card for myself and when we go back I am getting one for Jeff as well. He wants his own, so I am making a pretty big deal out of it! They both are signed up for the summer reading program here. They both have already won a book or board book of their choice, a pizza coupon, and a toy. So they are doing really well. It helps me too because now I am more conscious of reading to them. They love logging the books and seeing the points go up!
I am so tired right now, I just wanted you all to know we have not fallen off the face of the Earth!
We are all sick (except M, he has an amazing immune system). He took Charlotte to the ER last night about 11:30 pm and they admitted her to the Children’s Hospital after doing 2 breathing treatments and she was not better. She had 2 before that at home, so the total was up to 4. They put her on oxygen. I stayed home with our son because well, we are sick too and honestly I did not want to spread this any more than we had to. This morning I made calls to our appointments on Tuesday and Wednesday to cancel. M just called a bit ago and once the attending doctor comes in and looks at Charlotte they will possibly take her off the oxygen and then the timer is on, with watching her be sure her oxygen levels are stable. They want to watch her for 12-24 hours then they will release her. Hopefully, by tomorrow or Wednesday, she will be home. This has been super hard on us of course. Jeff is not taking this lightly. He was recently diagnosed as mild/moderate autistic. So, I am working on some things for him. Not a great time to be sick! Gotta run!